IPBF: who are we ?

 
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interstitial cystitis / bladder pain syndrome (IC/BPS)  
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Welcome to the International Painful Bladder Foundation
Quick find:
 

- IC/BPS Brochure
- IPBF leaflet

- Toilet cards
- IC/BPS booklet (6 pages)
- IC/BPS fact sheet
- Information in other languages

The IPBF is a non-profit, voluntary, umbrella organization, active worldwide, that promotes knowledge and awareness of interstitial cystitis/bladder pain syndrome, Hunner lesion, hypersensitive bladder, chronic pelvic pain and associated disorders among patients, patient support groups, health professionals and the general public. The IPBF promotes the interests of IC/BPS patients around the globe.

Reproduction of information provided on this IPBF site is authorised, unless otherwise specifically stated, provided that the source is clearly acknowledged as: International Painful Bladder Foundation https://www.painful-bladder.org/ (see disclaimer & copyright)

   

New on the website

 
  • NEW: IPBF e-Newsletter, Issue 64, January 2023. Read more...

  • NEW: IPBF Research Update, January 2023. Read more...

  • IPBF e-Newsletter, Issue 63, September 2022. Read more...

  • IPBF Research Update, September 2022. Read more...

  • IPBF e-Newsletter, Issue 62, May 2022. Read more...

  • IPBF Research Update, May 2022. Read more...

  • Review of the Virtual Global Meeting of IC/BPS patient advocates, 5 December 2020, organized by the Dutch ICP and IC India. Read more...

  • Pan-European Pain Project IMI-PainCare - Review of 2020 and Engagement of Patient Organisations. Read more...

  • Presenting an atlas of Hunner lesions in interstitial cystitis which can be identified with office cystoscopy.
    Carrie Ronstrom, H Henry Lai. Neurourol Urodyn. 2020 Sep 9. doi: 10.1002/nau.24500. Online ahead of print. PMID: 32902893 DOI: 10.1002/nau.24500
    This article provides an atlas of representative images of the variability in Hunner lesion appearance, aimed at assisting clinicians in proper visual diagnosis of Hunner lesions in an office setting. Read more...

  • Review of the Virtual Annual Meeting of the Global Interstitial Cystitis/Bladder Pain Syndrome Society, India, 5 & 6 September 2020. Read more...
  • Dr Joop P van de Merwe in the Netherlands is continually updating an interesting and informative article about COVID-19 (in Dutch). Read more...

  • Hunner lesion disease differs in diagnosis, treatment and outcome from bladder pain syndrome: an ESSIC working group report by Fall M, Nordling J, Cervigni M, et al. Scand J Urol, Published online: 28 Feb 2020.
    There is confusion about the terms of bladder pain syndrome (BPS) and Interstitial Cystitis (IC). The European Society for the Study of IC (ESSIC) classified these according to objective findings. One phenotype, Hunner lesion disease (HLD or ESSIC type 3C) differs markedly from other presentations. Therefore, the question was raised as to whether this is a separate condition or BPS subtype.
    Read more...

  • Review of the International Patient Advocate Networking Meeting Organized by the Dutch ICP, 7 December 2019, Amsterdam. Read more...

  • Review of the ESSIC 2019 Annual Meeting, Amsterdam 5-7 December 2019. Read more...

  • Associated diseases in interstitial cystitis/bladder pain syndrome. A major update of this IPBF Publication No 2. Read more...

  • An update of Interstitial Cystitis/Bladder Pain Syndrome: an Overview of Diagnosis & Treatment. Read more...
  • Review of the International Continence Society (ICS) 49th Annual Meeting, 3-6 September 2019, Gothenburg Sweden. Read more...

  • 4th International Consultation on Interstitial Cystitis Japan (ICICJ) and the Annual Meeting of the Society of Interstitial Cystitis of Japan (SICJ) 17-18 April 2018, Kyoto, Japan. Read more...

  • Special Open Access Issue from the 4th International Consultation on Interstitial Cystitis, Japan (ICICJ) and the Annual Meeting of the Society of Interstitial Cystitis of Japan (SICJ), 17-18 April 2018, Kyoto, Japan.
    International Journal of Urology, volume 26, issue S1, June 2019. Read more...

  • Review of the 4th World Congress on Abdominal and Pelvic Pain "A Lifecourse and Lifestyle Approach", 11-12 May 2019, London, UK. Read more...

  • Review of the International Continence Society (ICS) Annual Scientific Meeting, 28-31 August 2018, Philadelphia, USA. Read more..

  • Review of the European Association of Urology (EAU) Annual Congress 2018, 16-20 March 2018, Copenhagen, Denmark. Read more...

  • Bladder Pain Syndrome– An Evolution. Current guidelines compiled from the United States, Europe and Asia, which discuss disease management to give the reader a quick reference guide. Read more...

  • Review of the International Continence Society 47th Annual Scientific Meeting, 12-15 September 2017, Florence, Italy. Read more...

  • Translational Andrology and Urology(TAU), Supplement on Interstitial Cystitis/Bladder Pain Syndrome, Edited Sant/Saban (Open Access):
    Part I: Vol 4, No 5 (October 2015). Read more...
    Part II: Vol 4, No 6 (December 2015). Read more...
  • Review of the 2nd World Congress on Abdominal and Pelvic Pain (WCAPP), 11-13 June 2015, Acropolis Nice, France. Read more...

  • Link to the NIH/NIDDK MAPP Research Network home page. Click here...

Please make a donation to the work of the IPBF.
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© 2006-2023 International Painful Bladder Foundation (IPBF). All rights reserved.