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interstitial cystitis &
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click on the name to jump to the site (if available)

   
  • Interstitial Cystitis Support Group of Australia
    Contact: Katya Stooke
    PO Box 144, Richmond, VIC 3121
    Australia

    katyabuc@hotmail.com

 

  • Interstitial Cystitis Support Group
    Mercy Hospital for Women
    Clarendon Street,
    East Melbourne, 3002 Victoria
    Australia
    Contact: Christine Murray

     cjmurray@mercy.com.au

 

 

 

 

 

  • Interstitial Cystitis Patient Support North East Brazil
    Contact person: Ariel Scafuri, MD
    Universidade Federal do Ceará
    Rua Republica do Libano, 88 apto 200
    Fortalexa, Ceará
    Brazil 60160-140
    tel: 55-32426652 and 99271133

    urologia@gmail.com

 

 

 

  • IC/PBS Support Group
    Ottawa, Canada (English)
    Contacts:

    Inga Legere 613-839-6188
    Anne Raina 613-733-5891
 
 
  • Contact person: Libor Zamecnik, MD
    Urologicka Klinika
    VFN a 1. LF UK, Ke Karlovu 6
    128 08 Praha 2
    Czech Republic

    libor.zamecnik@lf1.cuni.cz

 

 

  • Steinunn Joergensen
    Project Nurse
    Department of Urology
    Herlev Hospital, University of Copenhagen
    DK-2730 Herlev, Denmark

    stjr@herlevhosp.kbhamt.dk

 

 

 
 

 

 
 
 

 

 

 
  • IC Support Group East Africa Naukuru Chapter
    Chairman: James Gathuthi Mwangi
    P.O. Box 16521
    Nakuru 20100
    Kenya

    jgmwangi2003@yahoo.com

 

 

  • New Zealand Painful Bladder Support Group NZICSG
    Chairman: Dot Milne
    P.O. Box 33-264
    Christchurch
    New Zealand
    tel: 03-347-9007
    weedot@xtra.co.nz

 

 

  • Contact person: Fernando Leon MD
    Lord Nelson 431, Miraflores
    Lima 18
    Peru
    tel: 511-441-8386/511-421-6022
    fax: 511-441-0276
    home: 511-445-3150

    ferleon@terra.com.pe

 

 

 
 
  • Contact person: Paulo Dinis Oliveira MD
    Dept of Urology
    Hospital S. João
    4200 Porto
    Portugal
    tel (hospital): 351225512100

    cruzfjmr@med.up.pt

 

 

  • Bladder & Bowel Foundation
    SATRA Innovation Park
    Rockingham Road
    Kettering, Northants, NN16 9JH

    Tel  01536 533255
    Fax 0870 770 3249
 
  • AARDA
    American Autoimmune Related Diseases Association
 
 
updated 9 January 2012
 
  • NORD
    National Organization for Rare Disorders
 
  • Prostatitis Foundation
    1063 30th Street Box 8
    Smithshire, Illinois 61478
    fax 309-325-7184
    voice mail 1-888-891-4200

 

 

   
 
   
 

 

  • EURORDIS
    European Organization for Rare Diseases

  • Orphanet
    database on rare diseases and orphan drugs
 
   

 

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