IPBF: who are we ?

 
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painful bladder syndrome & interstitial cystitis (PBS/IC)  
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click on the name to jump to the site (if available)

e-mail address
   
liliaraci@hotmail.com
  • Fundacion Geiser: Geiser Foundation
    Linkage, Research and Support Group for Rare Diseases
    Avellaneda 595, Ciudad de Mendoza, Argentina
    Tel: (54911) 15-5503-9901, Tuesday to Friday, 14.00 to 18.00 (Argentina time)
fundgeiser@yahoo.com.ar

 

  • Interstitial Cystitis Support Group
    Mercy Hospital for Women
    Clarendon Street,
    East Melbourne, 3002 Victoria
    Australia
    Contact: Christine Murray

 cjmurray@mercy.com.au

info@continence.org.au

ica-austria@gmx.at

info@icpb.be

  • La Paz IC Support Group
    Contact: Maria Eulalia Anker
    Tel: 591-2-271-2761

eulalia@ceibo.entelnet.bo

  • Interstitial Cystitis Patient Support North East Brazil
    Contact person: Ariel Scafuri, MD
    Universidade Federal do Ceará
    Rua Republica do Libano, 88 apto 200
    Fortalexa, Ceará
    Brazil 60160-140
    tel: 55-8524239-99970367

uro@uol.com.br

 

frobert@videotron.ca

  • Contact person: Libor Zamecnik, MD
    Urologicka Klinika
    VFN a 1. LF UK, Ke Karlovu 6
    128 08 Praha 2
    Czech Republic

libor.zamecnik@lf1.cuni.cz

graphicsd@gmail.com

  • Steinunn Joergensen
    Project Nurse
    Department of Urology
    Herlev Hospital, University of Copenhagen
    DK-2730 Herlev, Denmark

stjr@herlevhosp.kbhamt.dk

ci_france@hotmail.com

 

 

  • Contact person: Nagendra Mishra, MD
    2nd floor, Shantam complex
    Gurukul road, Opp Navneet House
    Memnagar
    Ahmedabad-380061, India
    tel: 917927497083
    fax: 917940054104

nagendraad1@yahoo.com 

  • Interstitial Cystitis Patient Network - India
    Contact: Indu Mishra
    Tel: 0265-553-2656

moonlotus2001@yahoo.com

AICI@mclink.it

  • IC Tomonoki
    Chairman: Masako Katsurada
    1459-56, Funaki-Cho Oumihachiman
    Shiga 523-0084
    Japan
    tel/fax: 81-748.338222

info@tomonoki.org  ?

 

info@hainyo-net.org
  • IC Support Group East Africa Naukuru Chapter
    Chairman: James Gathuthi Mwangi
    P.O. Box 16521
    Nakuru 20100
    Kenya

jgmwangi2003@yahoo.com

flore@aci-mexico.com

info@icpatienten.nl

info@nvsp.nl

  • New Zealand Painful Bladder Support Group NZICSG
    Chairman: Dot Milne
    P.O. Box 33-264
    Christchurch
    New Zealand
    tel: 03-347-9007

weedot@xtra.co.nz

kvarste@online.no

  • Contact person: Fernando Leon MD
    Lord Nelson 431, Miraflores
    Lima 18
    Peru
    tel: 511-441-8386/511-421-6022
    fax: 511-441-0276
    home: 511-445-3150

ferleon@terra.com.pe

  • Contact person: Piotr Radziszewski MD
    Department of Urology
    Warsaw School of Medicine

pradziszewski@poczta.onet.pl

  • IC Polska
    Group leader: Agnieszka Blazewicz

IC-Polska-owner@yahoogroups.com

  • Contact person: Paulo Dinis Oliveira MD
    Dept of Urology
    Hospital S. João
    4200 Porto
    Portugal
    tel (hospital): 351225512100

cruzfjmr@med.up.pt

andri_66@yahoo.com

abatycipina@hotmail.com

asociacionacaci@hotmail.com

 

aessjogren@hotmail.com

sm7gei@swipnet.se

icatw@mail.taic.doh.gov.tw

info@cobfoundation.org

info@aca.uk.com
  • InContact
    (for people affected by bladder and bowel problems)
    Satra Innovation Park
    Rockingham Road
    Kettering, Northants
    NN16 9JH
    Tel  0870 770 3246
    Fax 0870 770 3249
info@incontact.org
info@pelvicpain.org.uk
 
  • AARDA
    American Autoimmune Related Diseases Association
 
 
icamail@ichelp.org
 
 
  • NORD
    National Organization for Rare Disorders
 
  • Prostatitis Foundation
    1063 30th Street Box 8
    Smithshire, Illinois 61478
    fax 309-325-7184
    voice mail 1-888-891-4200

 
  • P.U.R.E. H.O.P.E.
    Support group association
    for chronic pelvic pain conditions
    Texas, USA
    President: Cindy Sinclair
csinclair@pure-hope.org

 

 
   
 

rod.mitchell@infodor.fsnet.co.uk

  • EURORDIS
    European Organization for Rare Diseases
 

info@patientsorganizations.org

info@painful-bladder.org
info@multinationalica.org
  • Orphanet
    database on rare diseases and orphan drugs
 
   

icadvice@icadvice.com

 

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