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click on the name to jump to the site (if available)
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e-mail address |
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| Argentina |
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liliaraci@hotmail.com |
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- Fundacion Geiser: Geiser Foundation
Linkage, Research and Support Group for Rare Diseases
Avellaneda 595, Ciudad de Mendoza, Argentina
Tel: (54911) 15-5503-9901, Tuesday to Friday, 14.00 to 18.00 (Argentina time)
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fundgeiser@yahoo.com.ar |
Australia |
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- Interstitial Cystitis Support Group
Mercy Hospital for Women
Clarendon Street,
East Melbourne, 3002 Victoria
Australia
Contact: Christine Murray
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cjmurray@mercy.com.au |
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info@continence.org.au |
Austria |
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ica-austria@gmx.at |
Belgium |
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info@icpb.be |
Bolivia |
- La Paz IC Support Group
Contact: Maria Eulalia Anker
Tel: 591-2-271-2761
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eulalia@ceibo.entelnet.bo |
Brazil |
- Interstitial Cystitis Patient Support North East Brazil
Contact person: Ariel Scafuri, MD
Universidade Federal do Ceará
Rua Republica do Libano, 88 apto 200
Fortalexa, Ceará
Brazil 60160-140
tel: 55-8524239-99970367
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uro@uol.com.br |
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Canada |
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frobert@videotron.ca |
Czech Republic |
- Contact person: Libor Zamecnik, MD
Urologicka Klinika
VFN a 1. LF UK, Ke Karlovu 6
128 08 Praha 2
Czech Republic
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libor.zamecnik@lf1.cuni.cz |
Denmark |
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graphicsd@gmail.com |
- Steinunn Joergensen
Project Nurse
Department of Urology
Herlev Hospital, University of Copenhagen
DK-2730 Herlev, Denmark
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stjr@herlevhosp.kbhamt.dk |
France |
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ci_france@hotmail.com |
| Germany |
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India |
- Contact person: Nagendra Mishra, MD
2nd floor, Shantam complex
Gurukul road, Opp Navneet House
Memnagar
Ahmedabad-380061, India
tel: 917927497083
fax: 917940054104
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nagendraad1@yahoo.com |
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- Interstitial Cystitis Patient Network - India
Contact: Indu Mishra
Tel: 0265-553-2656
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moonlotus2001@yahoo.com |
Italy |
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AICI@mclink.it |
Japan |
- IC Tomonoki
Chairman: Masako Katsurada
1459-56, Funaki-Cho Oumihachiman
Shiga 523-0084
Japan
tel/fax: 81-748.338222
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info@tomonoki.org ?
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info@hainyo-net.org |
Kenya |
- IC Support Group East Africa Naukuru Chapter
Chairman: James Gathuthi Mwangi
P.O. Box 16521
Nakuru 20100
Kenya
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jgmwangi2003@yahoo.com |
| Mexico |
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flore@aci-mexico.com |
Netherlands |
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info@icpatienten.nl |
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info@nvsp.nl |
New Zealand |
- New Zealand Painful Bladder Support Group NZICSG
Chairman: Dot Milne
P.O. Box 33-264
Christchurch
New Zealand
tel: 03-347-9007
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weedot@xtra.co.nz |
Norway |
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kvarste@online.no |
Peru |
- Contact person: Fernando Leon MD
Lord Nelson 431, Miraflores
Lima 18
Peru
tel: 511-441-8386/511-421-6022
fax: 511-441-0276
home: 511-445-3150
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ferleon@terra.com.pe |
Poland |
- Contact person: Piotr Radziszewski MD
Department of Urology
Warsaw School of Medicine
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pradziszewski@poczta.onet.pl |
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IC-Polska-owner@yahoogroups.com |
Portugal |
- Contact person: Paulo Dinis Oliveira MD
Dept of Urology
Hospital S. João
4200 Porto
Portugal
tel (hospital): 351225512100
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cruzfjmr@med.up.pt |
| Romania |
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andri_66@yahoo.com |
Spain |
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abatycipina@hotmail.com |
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asociacionacaci@hotmail.com
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aessjogren@hotmail.com |
Sweden |
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sm7gei@swipnet.se |
| Taiwan |
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icatw@mail.taic.doh.gov.tw |
United Kingdom |
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info@cobfoundation.org |
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info@aca.uk.com |
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- InContact
(for people affected by bladder and bowel problems)
Satra Innovation Park
Rockingham Road
Kettering, Northants
NN16 9JH
Tel 0870 770 3246
Fax 0870 770 3249
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info@incontact.org |
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info@pelvicpain.org.uk |
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| United States |
- AARDA
American Autoimmune Related Diseases Association
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icamail@ichelp.org |
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- NORD
National Organization for Rare Disorders
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- Prostatitis Foundation
1063 30th Street Box 8
Smithshire, Illinois 61478
fax 309-325-7184
voice mail 1-888-891-4200
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- P.U.R.E. H.O.P.E.
Support group association
for chronic pelvic pain conditions
Texas, USA
President: Cindy Sinclair
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csinclair@pure-hope.org |
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| international |
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rod.mitchell@infodor.fsnet.co.uk |
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- EURORDIS
European Organization for Rare Diseases
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info@patientsorganizations.org |
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info@painful-bladder.org |
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info@multinationalica.org |
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- Orphanet
database on rare diseases and orphan drugs
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other PBS/IC websites |
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icadvice@icadvice.com |
