IPBF: who are we ?

 
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International Painful Bladder Foundation: who are we?
 
Welcome to the website of the International Painful Bladder Foundation (IPBF)
   
Executive Board

Jane M. Meijlink (Chairman)
Florentina Ferreyra (Treasurer)
Toby Meijlink (Secretary)
Nagendra Mishra M.D. (Board Member)
Dot Milne RN (Board Member)
 
   
Annual Reports  
 
   
International Medical Advisory Board

The International Painful Bladder Foundation (IPBF) has a panel of international medical advisors who provide the IPBF with valuable advice and assistance in relation to medical issues. The members of this board are as follows:
 
   
Belgium Jean-Jacques Wyndaele, MD
urologist
   
Canada Jerzy Gajewski, MD 
urologist
   
Czech Republic Libor Zámečník, MD
urologist
   
Germany Daniela Marschall-Kehrel, MD
urologist
   
India Nagendra Mishra, MD
urologist
mail to  
Mexico José Luis Campos Contreras, MD
urologist
mail to  
Poland Piotr Radziszewski, MD
urologist
   
Portugal Paulo Dinis Oliveira, MD
urologist
   
Russia Dimitry Pushkar, MD 
urologist
   
  Andrey Zaitcev, MD
urologist
   
Saudi Arabia

Waleed Altaweel, MD
urologist

   
South Africa Hans-Heinrich Rabe, MD
urologist
   
Taiwan Alex Tong-Long Lin, MD 
urologist
   
United Kingdom Paul Irwin, MD
urologist
   
  Christopher Chapple, MD
urologist
   
USA Philip Hanno, MD
urologist
   
  Robert M Moldwin, MD,
urologist
   
  Grannum R Sant, MD
urologist
   
   

IPBF

The IPBF is a non-profit voluntary organisation which promotes knowledge and awareness of interstitial cystitis (IC), bladder pain syndrome (BPS), painful bladder syndrome (PBS), hypersensitive bladder (HSB), chronic pelvic pain (CPP) and associated disorders among patients, patient support groups, health professionals and the general public worldwide.

 

The International Painful Bladder Foundation was formally incorporated as an international non-profit voluntary organisation by notarial deed on 2 September 2005 and was registered at the Chamber of Commerce in Rotterdam, the Netherlands under number: 24382693 on 5 September 2005. The International Painful Bladder Foundation was officially launched on 1 January 2006.

No salaries or remuneration are paid to Board Members who work on an entirely voluntary basis.

The IPBF executive office is located in Rotterdam. In all legal issues, Dutch law prevails.

Charity Fiscal Number: 8168.41.597

 
   

Mission

The mission of the International Painful Bladder Foundation is:

  • to promote the interests of patients with interstitial cystitis, bladder pain syndrome, painful bladder syndrome, hypersensitive bladder, chronic pelvic pain and associated disorders
  • to increase awareness and knowledge of with interstitial cystitis, bladder pain syndrome, painful bladder syndrome, hypersensitive bladder, chronic pelvic pain and associated disorders among patients, doctors and other healthcare providers, health institutions, industry and the general public worldwide by gathering and disseminating, by any means and in any form, the most up-to-date knowledge and information about these disorders
  • to stimulate international scientific research
  • to promote international cooperation between people involved in with interstitial cystitis, bladder pain syndrome, painful bladder syndrome, hypersensitive bladder, chronic pelvic pain and associated disorders
  • to enter into joint ventures in any form and any place with organisations working to promote similar medical or patient interests
  • to raise funds for the purpose of carrying out these activities
And any other activities that directly or indirectly promote the above mission, in the widest sense of the word.
 
   
Information

The International Painful Bladder Foundation provides information on the latest developments in the field of IC, BPS, PBS, HSB, CPP and associated disorders through its website, newsletter, congress booths, publications and presentations
 
   
Newsletter

If you would like to receive our free email newsletter with an update on international developments, please send your email address to
info@painful-bladder.org
 
   
Projects

The IPBF organises projects aimed at helping patients directly or indirectly, internationally or in specific countries, including developing countries. On request, it helps national patient support groups get started or helps to raise awareness in a specific country.
 
   

Funding

The IPBF entirely depends on sponsoring and donations to fund its activities.

 
   
Associate Membership

Associate Member of the International Alliance of Patients’ Organizations (IAPO).
http://www.patientsorganizations.org
   

Associate Member of the European Organisation for Rare Diseases (Eurordis).
http://www.eurordis.org

Associate member of Pain Alliance Europe (PAE)
http://www.pae-eu.eu

Disclaimer and Copyright  
   
 
   

Contact the International Painful Bladder Foundation

Address:
Burgemeester Le Fèvre de Montignylaan 73
3055 NA Rotterdam
The Netherlands

Tel/fax : +31-(0)10-4613330

E-mail : info@painful-bladder.org

 
   
Contact the IPBF webmaster
Contact webmaster
 
   
updated 14.02.2014 12:18 © 2006-2014 - International Painful Bladder Foundation (IPBF). All rights reserved.